After suffering from Ulcerative Colitis for over 10 years, and enduring complications from multiple surgeries, my entire colon was removed, resulting in a permanent ileostomy.
It’s funny how long it took me to write this. Even though I have lived with an ostomy for almost a decade, and am confident offering support and speaking about my condition, I find myself feeling vulnerable about being open here. I suppose it takes me back to the feelings I had at the beginning of my story. The stigma and fears you (or someone you know) might be feeling now.
I first got sick when I was 18, and spent my 20’s as a young professional, madly dashing from boardroom to bathroom. As a young mother, I would race down the hallway carrying my baby’s highchair to spend countless, painful hours in the washroom. Ultimately my illness prevented me from working, due to chronic pain and fatigue, and my quality of life was very poor. Looking back it’s hard to believe I thought life could be worse, but because of the stigma of having an ostomy, I stayed sick a lot longer than necessary.
With society’s emphasis on appearance, it’s challenging to maintain a positive body image with an ostomy. The fear of judgment and rejection can create depression and isolation. Initially, it can be upsetting and demoralizing, and imagining normal activities, not-to-mention intimacy can be overwhelming.
Between my full time job, traveling and trying out all sorts of activities I thought I could never do again, I founded myKareKit.com. The website offers product reviews and a style guide so you can get back to everything you did before your surgery and more. This blog supports myKareKit.com
When I talk with people who share my condition, I often recognize shame in their eyes, and when they look into mine, they see the shame is gone. It is my intention to offer a light and informative resource and my hope that you will move forward with me today.
Note: myKarekit.com solution items featured are never paid for advertising. I feature those products I like or things I have actually reviewed. Ads will be clearly marked.