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Archive for the ‘Coping’ Category

This is the not so welcome sign on my hospital door the week of Thanksgiving… No sooner did I finish the previous blog post about being in the hospital during holidays did I start to feel a little “off”. I landed in the hospital after collapsing with sudden dehydration and the need for several bags [...]

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During my final year of illness with Ulcerative Colitis before I had my surgery to get a permanent colectomy, I was puffed up from steroids and doubled over miserable, living in my robe and forcing a smile as I prepared for the holidays. It’s strange to remember who fatigued I was and how much energy [...]

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I stumbled upon this spontaneously as I was feeling sad tonight.  I was literally thinking about missing people I love and feeling apart from any connection. I was feeling lost and needing some creativity. Draw cartoons, art, brainstorms, anything. It made me feel better. Give it a shot. No one needs to see it but [...]

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I recently lost a very dear friend to brain cancer. I watched her health deteriorate, she maintained the strength to fight. Because of my own experience with my body letting me down, I initially was able to identify with her discouraging moments. After a while though, death approached and although I was not able to [...]

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Twilight Dreams

Sometimes there seems to be nothing to do, nothing going on and boredom sets in. I was in Phoenix recently and plans were altered due to rain. Rain we seemed to bring with us from Seattle. Usually this happens when I’m a little depressed and I allow myself to sit and stare. Don’t get me [...]

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No weekend plans? Me neither. Sometimes it makes me feel lonely. Then I allow my mind to wander to insecure places of doubt and sad memories. This video views being alone in a lovely and nurturing light. I have weekend plans now: to be alone.

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How often do I think about my bowel bag? Enough to write about it in journals for 12 years. And another 15 before that, documenting my illness, disregard of my illness, depression and exhilaration. Adventures and stories. Research and library visits (before the internet) had me reading up on all the things I’d be able [...]

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For Positive Living shows a short film by Tim Bedingfield about artist Heidi Yssennagger’s work creating “Mercy” for OstomyAid. I was moved by the quiet grace of this art project, along with the story about woman suffering globally. Using appliance materials, an artist with a stoma has created a piece in response to her research [...]

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Bathroom stall walls. Stared at a lot of them over the years. This image was from the walls of a stall that was decoupaged with Asian newspapers and I found it wonderfully appealing. For people who have suffered bowel disease, any little distraction is appreciated whilst spending so much time in the loo. I took [...]

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Today I opened a new door when I spoke before a group of nursing students about living with an ostomy.  Because of my fondness for those in health care, I immediately felt a sense of safety and comfort.  After I shared my story, I answered questions ranging from diet to intimacy,  to my wardrobe and [...]

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