Let go a little


I took the leap a few summers ago off a dock I jumped from as a teenager. Having an ostomy makes you nervous of the adhesive coming off – let alone the impact of water! After years of avoiding doing the things I used to love and becoming far more cautious than necessary, I slowly started to let go and take chances. This dock jump is an annual summer tradition at the end of a long, hot day at the island fair. It was thrilling to take the jump, and my parents and daughters were proud of me. That felt wonderful too. Being a strong role model for my daughters is important to me so pushing past my fear is something I have to do.

Let go a little. Be prepared for anything of course – but as life proves over and over again, it’s not usually the things we fear that toss us – it’s the unexpected. And this day was unexpectedly exhilarating!

Mercy’s video

For Positive Living shows a short film by Tim Bedingfield about artist Heidi Yssennagger’s work creating “Mercy” for OstomyAid.

I was moved by the quiet grace of this art project, along with the story about woman suffering globally. Using appliance materials, an artist with a stoma has created a piece in response to her research about women with stomas in Africa. Creativity has helped me to cope and this video shows how we can do more for one another. Like with any illness or medical setback, people relate to the personal and emotional struggles unique to our challenge. Helping others has always made me feel a little better. Let’s see what we can do together. Start by watching Mercy\’s video.

I’m bored of this ostomy game…

Do you find having to change your ostomy appliance an emotional hurdle? If you don’t, I’d love to hear from you. No matter how many years I’ve managed my ostomy, I find the process of refreshing my adhesives and pouch to be draining. Yikes, no pun intended. I do, I just don’t like it, put it off until I’m tired, or I’ve had coffee or I just want to go to bed but I can FEEL it MUST be changed. Thoughts on that? I try to do morning management but the early part of my day is packed already, let alone stopping to stare at the part of my body that’s always on my mind anyway…

Apron Therapy


Along with obsessing over alternatives to overalls, I spent quite a bit of time madly making aprons. After I finished a very satisfying batch made from vintage fabric, I realized I was subconsciously looking for ways to cover or protect my new appliance. They surround me in my studio office, hanging happily on hangers.  I doubt they will ever see food prep, although I might toss them on friends and have an apron party someday.